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The Importance of Lived Experience in Making Change
***There is a content warning for this post as it briefly mentions self-harm***
I am a mature student entering the 3rd year of my degree, joint honours psychology and criminology. My choice in academic study (and hopeful career path) is largely informed by my own life experiences which have and will continue to be one of my biggest strengths. I have been in mental health services as a patient since my pre-teens and I have worked in a variety of mental health settings including inpatient forensic mental health and rehabilitation. My criminological interest was piqued after being a victim to violent crimes as an adult. All of this, as well as some conversations I have had with lecturers and peers over the last 2 years, has me thinking about the influence and importance of lived experiences in our academic and career choices, and the opportunities that lived experiences create for making change and battling adversity.
When we experience anything in life, big or small, positive or negative, we can gain incredible insight about ourselves and the world around us in a way that we would never have done if we didn’t have those experiences. It can change or set the trajectory of our lives. When we are in the correct place in our lives, our recovery, our minds to be able to pour from a cup that isn’t empty, we can find ourselves in an amazing place where we can help others and inspire change for those who have experienced or are likely to experience what we have. Perhaps even the ones who never have and never will. All equally as important.
Every system, service, or organisation needs to have the input from those who have experienced it from the other side. We need to know how the work is being perceived at the other end. It can be really difficult to collate feedback, especially the positive stuff, or see end-to-end results and we find that if no-one speaks up, what will be done is the easy thing, the cheap thing, or the well-intentioned but mismatched thing. Of course, we may be able to go beyond advice and become a part of a service or a voice ourselves and ‘be the change.’ We can inspire change by instilling more trust in others that we truly understand their predicament and that we have moved or are moving through it, showing them that it is possible or that they’re not alone. It can be refreshing and a huge learning experience for others in the service, as a user or provider, who may be stuck, going through the motions unequipped with knowledge of how to make change for the better, especially in sectors that can be particularly challenging day-to-day.
If I may give a personal example from when I worked on a psychiatric ward for forensic rehabilitation. I worked with many patients who felt as though it was staff vs patients, that we couldn’t possibly know what it was like for them, that we were only there because we were paid, and because they were detained against their will, we had to keep them there. I didn’t hide my personal experiences, my real reasons for being there, but no one really asked so I didn’t shout about them either. When the COVID-19 pandemic hit, for reasons of infection control, I had no choice but to obey a rule, ‘‘bare-below-the-elbow.’’ That meant I had to wear short sleeves on the ward. It meant revealing to my patients the scars I bear from self-harm. This prompted lots of questions, some less awkward than others, but it opened up so many wonderful conversations and breakthroughs. I spoke with my patients about knowing how that feels, that I’ve been on the medication they’re struggling with, and I’ve done the therapy they’re reluctant to try. It connected me to my patients and my work in such a wonderful way and meant my patients trusted me more, trusted the process more and engaged in ways they haven’t before. It meant that when decisions were made about patient care or ward processes, I could advocate from a place of empathy and understanding and in cases where people have their rights reduced or taken away, detained against their will, are vulnerable, are disadvantaged, we can’t do it enough.
Being loud about our experiences means raising awareness, breaking down stigma and stereotypes to create more inclusive and accepting societies, building supportive communities, and helping people along their path. It can serve as inspiration for people who may never have even given a thought to their experiences, things they witness or people who experience hardship and keep it under wraps.
Perhaps this even serves as a little nudge to be open to the experiences of others, to recognise and challenge your own biases, the things you may or may not understand. If you find yourself in a position to decide who to hire, interact with, which project to run; find the lived experience, consider the people who just need a little more support and feel like a little risk, because you never know what it could do. We can apply this to healthcare, criminology, charity, or anything that feels like it is our calling.
It can be such a tough and slow process, it won’t always be welcomed, it might not always work out. There may be people, services and societal norms or stigma that have an agenda or goals that don’t align with yours, not everybody likes change or will be willing to put in the effort. We may not always get the answers we are looking for because of the complex world we live in. But that doesn’t mean we shouldn’t try, right?
#Criminology Book Club: The Silent Patient
As you know from our last #CriminologyBookClub entry a small group of us decided the best way to thrive in lockdown was to seek solace in reading and talking about books. Building on the success of the last blog entry, we’ve decided to continue with all seven bloggers contributing! Our third book was chosen by @5teveh and it’s got us all talking! Without more ado, let’s see what everyone thought:
I enjoyed reading The Silent Patient – it was a quick and gripping read that kept me guessing (and second guessing!) throughout. I found it almost impossible to put down and could have happily read it in one sitting if time allowed. I didn’t empathise with many of the characters however, and found a couple of the plot points frustrating. I’d still recommend it though!
@saffrongarside
This is a psychological thriller that embraces Greek drama and pathos. From the references to Alcestis by Euripides and the terrible myth of death swapping to the dutiful Dr Diomedes, the characters are lined up as they are preparing from their dramatic solo. The doctor is trying to become a comforting influence in the fast pace of the story only to achieve the exact opposite. In the end he leaves in a puff of smoke from one of his cigars. The background of this story is played in a psychiatric facility, that is both unusual and conducive to amplify the flaws of the characters. This is very reminiscent of all Greek tragedies where the hero/heroine is to meet their retribution for their hubris. Once punishment comes the balance of the story is restored. This norm seems to be followed here.
@manosdaskalou
Well done to @Steve for selecting the anxiety inducing book that is The Silent Patient. I found it difficult to put this book down, as it was easy to read and a definite page turner. Once I started reading, I desperately wanted to find out what had actually happened. If Alicia had a perfect life then why would she shoot her husband FIVE TIMES in the head? It’s difficult to say much about this book without giving the plot away. I did feel for Alicia as she was surrounded by a sea of creepy and unlikable characters. Some might find the portrayal of mental health and Alicia (as the main female character) slightly insulting. Although, as we discussed in the book club, perhaps we should see this book for the thriller that it- and not try to criminologically analyse it?! As far as thrillers go, I think the book is a very good read.
@haleysread
The Silent Patient is 339 pages of suspense-filled, gripping fiction which leaves the reader with their jaw wide open. As a novel it is brilliant. Binge-worthy, unbelievable and yet somehow believable: that is until you have finished the book, and you sit back and start to pull the novel apart. DO NOT DO THIS! Get lost in the story of Theo and Alicia, be gripped and seated on the edge of your seat. It is worthy of the hype (in my humble opinion)!
@jesjames50
The Silent Patient is without a doubt a page turner! From start to finish the mystery of Alicia Berenson’s silence keeps you guessing. It is important for me to warn perspective readers that, when you start reading, it is difficult to put down, so clear your schedule. Throughout the novel you are guided through the complex life of psychotherapist Theo Faber and his mission to understand and connect with his patient that has ‘refused’ to talk, after she is found guilty of killing her husband. Alicia Berenson is admitted to a mental health hospital. This is the backdrop to disturbing yet intriguing story of how Alicia’s seemingly perfect life comes crashing down. With quirky characters, shocking revelations and suspense throughout The Silent Patient is a must read. Don’t take the story at face value, as there is a brilliant twist at the end.
As is only right and proper, we’ll leave the final word to @5teveh, after all he did choose the book 🙂
@svr2727
Not the normal sort of book I’d read, I was drawn in by the comments on the cover. It is impossible to warm to any character in The Silent Patient. The book is quite fast paced, and the writing makes it a real page turner. If you think you’ve got it, you are probably wrong. This is not a usual ‘who done it’ narrative. There are twists and turns that lead the reader through a small maze of sub plots involving characters in a tight setting. If you are looking for a hero or heroine and a happy ending, this is not the book for you. An enjoyable read in a sadistic sort of way.
@5teveh
Things I Miss: Small Pleasures – Helen
Small pleasures mean a lot, particularly at the moment when many normal pleasures are denied to us. If I can’t meet my friends, or go to restaurants, or engage in my hobbies at least I can enjoy a gin and tonic in the bath, or a nice dinner with an indulgent dessert (it is worrying how many such small pleasures involve food and alcohol!!). The lockdown hit halfway through Lent, when I was trying to exercise some self-discipline and lose a little weight, but having been forced to give up so much I could no longer do without chocolate and snacks! I am kept sane by daily walks around the village, appreciating (until today) the glorious spring weather and the emerging wild flowers and butterflies (six different species on our last long walk). And my husband and I distract ourselves with light-hearted TV. Friday Night Dinner and Britain’s Got Talent help to define the week and we’ve been working through old-favourite box sets of Phoenix Nights and I’m Alan Partridge.
In some ways the first couple of weeks were the hardest, when the rules kept changing. After a trying morning shopping for three households in a supermarket with bare shelves, at least I could reward myself with a cappuccino on the way home (I couldn’t sit down, or use a re-usable cup, but I could get a disposable take-away). But then all the coffee shops closed. On the evening of the day the schools closed, we went for a family walk in our local forest. At least we could enjoy that. We found a pond full of frogspawn and toad spawn and took pictures, planning a science project on reproduction in amphibians. We would go back every week and check on the progress of the tadpoles. But then they closed the forest. Each new lockdown was a fresh loss.
In the “Good Lives Model” (Ward, 2002) Tony Ward and colleagues propose that all people try to achieve a set of fundamental “primary goods”. These are: life; knowledge; excellence in work; excellence in play; agency; inner peace; relatedness; community; spirituality; pleasure; and creativity. In lockdown, many of our usual means of achieving these goods are no longer accessible. However, there is evidence all around of people striving towards these goods in novel ways. The primary good “life” refers to health and fitness. We may no longer be able to go to gyms or practise team sports, but country roads are full of cyclists and walkers, solitary or in family groups, and there has been an explosion in people exercising at home, with or without the assistance of Joe Wicks! My son, who is a junior sailor, is achieving his “excellence in play” through “Virtual Regatta”, a computer game which adheres to the principles of dinghy sailing and which has provided the platform through which competitions that should have taken place can continue after a fashion.
Our local vicar is in his element providing novel ways through which his flock can achieve “spirituality”: services live-streamed from his dining room; virtual coffee mornings; resources to use at home. I’ve outlined above some of the ways in which I am achieving “pleasure” in small ways. I’m sure the current shortages in flour are caused in some part by an increase in people achieving “creativity” through baking. My son alone has clocked up two different types of pastry, two different types of scone, two fruit crumbles, shortbread and a Simnel cake since the lockdown began! We achieve “relatedness” through Zoom and Skype and Facetime: I speak to my parents much more often than I did before the crisis and my husband replaces visits to the pub with his father and brother with a weekly “virtual pint night”. And we achieve “community” through standing together on our doorsteps every Thursday at 8pm to clap for the NHS.
The Good Lives Model was developed to understand and improve the rehabilitation of offenders. It proposes that offenders are trying to achieve the same primary goods as everyone else, but lack the skills, opportunities or resources to do so in pro-social ways. They therefore pursue their goods through methods which are illegal or harmful. Traditional approaches to working with offenders have been risk-focussed, analysing their past mistakes and telling them what they mustn’t do in the future. The Good Lives Model points us towards strengths-based and future-focussed interventions, whereby offenders identify new, prosocial ways of achieving their primary goods and are equipped with the skills to do so. The focus is on building a new “good life”, with the emphasis on what they can do rather than what they can’t.
It seems trite to compare life in lockdown to life in prison (although Jonathan Freedland in last Saturday’s Guardian references ex-prisoner Erwin James who believes the parallels are strong). There are, however, some similarities to life on probation supervision or parole licence. I can’t pretend to understand how it feels to live subject to licence conditions whereby even a minor breach could result in imprisonment. But in the current situation, I have a little insight into how it feels to live according to strict rules designed to minimise risk to myself and others; rules which are frustrating but for the common good; rules which tell me what I can’t do and where I can’t go; rules which sometimes change and goalposts which sometimes move. In this climate, as described above, small pleasures are important and it is essential to find new ways of achieving and maintaining primary goods. Lockdown has given me a fresh appreciation of Good Lives and, I hope, a deeper understanding of the impact of the decisions I make and the conditions I impose.
Helen Trinder
Associate Lecturer in Criminology at the University of Northampton and Psychologist Member of The Parole Board for England and Wales
References
Freedland, J. Adjust your clocks, lockdown is bending time completely out of shape. The Guardian, 25th April 2020.
Ward, T. (2002). The management of risk and the design of good lives. Australian Psychologist, 37, 172-179.
“My Favourite Things”: Charlotte Dann, Senior Lecturer in Psychology
My favourite TV show - Westworld My favourite place to go -out for food! My favourite city - Copenhagen My favourite thing to do in my free time - I’m a gamer, so spend a lot of time on my Switch My favourite athlete/sports personality - Rafael Nadal (I took Spanish up to A-Level, and had to do a whole project on him and his life – plus I love the tennis!) My favourite actor – Fiona Shaw – she plays my absolute favourite character in Killing Eve My favourite author - that’s a hard one! Right now it’s Philip Pullman My favourite drink - tea (milk two sugars) My favourite food - a good (medium rare) steak My favourite place to eat - right now I’m missing Nuovo (Northampton) for Italian food, but I also love Mowgli (in Birmingham) for Indian food I like people who - take time to actually listen to what you’re saying, undistracted I don’t like it when people - are rude! Who does?! My favourite book - I recent read Circe by Madeline Miller, and that’s definitely up there. The Power by Naomi Alderman is also great My favourite book character - Peeves from Harry Potter 🙂 My favourite film - this does change frequently! At the moment though I still have a lot of love for Midsommar. My favourite poem - I’m not a huge poetry person, but I did find Milk & Honey from Rupi Kaur interesting (a controversial choice I guess) My favourite artist/band - The Maccabees, all day everyday My favourite song - Waiting for the beat to kick in – Dan Le Sac vs. Scroobius Pip My favourite art - Georgia O’Keefe’s From the Faraway, Nearby, or Maman from Louise Bourgeois My favourite person from history - Dolly Parton is a queen