The Importance of Lived Experience in Making Change
***There is a content warning for this post as it briefly mentions self-harm***
I am a mature student entering the 3rd year of my degree, joint honours psychology and criminology. My choice in academic study (and hopeful career path) is largely informed by my own life experiences which have and will continue to be one of my biggest strengths. I have been in mental health services as a patient since my pre-teens and I have worked in a variety of mental health settings including inpatient forensic mental health and rehabilitation. My criminological interest was piqued after being a victim to violent crimes as an adult. All of this, as well as some conversations I have had with lecturers and peers over the last 2 years, has me thinking about the influence and importance of lived experiences in our academic and career choices, and the opportunities that lived experiences create for making change and battling adversity.
When we experience anything in life, big or small, positive or negative, we can gain incredible insight about ourselves and the world around us in a way that we would never have done if we didn’t have those experiences. It can change or set the trajectory of our lives. When we are in the correct place in our lives, our recovery, our minds to be able to pour from a cup that isn’t empty, we can find ourselves in an amazing place where we can help others and inspire change for those who have experienced or are likely to experience what we have. Perhaps even the ones who never have and never will. All equally as important.
Every system, service, or organisation needs to have the input from those who have experienced it from the other side. We need to know how the work is being perceived at the other end. It can be really difficult to collate feedback, especially the positive stuff, or see end-to-end results and we find that if no-one speaks up, what will be done is the easy thing, the cheap thing, or the well-intentioned but mismatched thing. Of course, we may be able to go beyond advice and become a part of a service or a voice ourselves and ‘be the change.’ We can inspire change by instilling more trust in others that we truly understand their predicament and that we have moved or are moving through it, showing them that it is possible or that they’re not alone. It can be refreshing and a huge learning experience for others in the service, as a user or provider, who may be stuck, going through the motions unequipped with knowledge of how to make change for the better, especially in sectors that can be particularly challenging day-to-day.
If I may give a personal example from when I worked on a psychiatric ward for forensic rehabilitation. I worked with many patients who felt as though it was staff vs patients, that we couldn’t possibly know what it was like for them, that we were only there because we were paid, and because they were detained against their will, we had to keep them there. I didn’t hide my personal experiences, my real reasons for being there, but no one really asked so I didn’t shout about them either. When the COVID-19 pandemic hit, for reasons of infection control, I had no choice but to obey a rule, ‘‘bare-below-the-elbow.’’ That meant I had to wear short sleeves on the ward. It meant revealing to my patients the scars I bear from self-harm. This prompted lots of questions, some less awkward than others, but it opened up so many wonderful conversations and breakthroughs. I spoke with my patients about knowing how that feels, that I’ve been on the medication they’re struggling with, and I’ve done the therapy they’re reluctant to try. It connected me to my patients and my work in such a wonderful way and meant my patients trusted me more, trusted the process more and engaged in ways they haven’t before. It meant that when decisions were made about patient care or ward processes, I could advocate from a place of empathy and understanding and in cases where people have their rights reduced or taken away, detained against their will, are vulnerable, are disadvantaged, we can’t do it enough.
Being loud about our experiences means raising awareness, breaking down stigma and stereotypes to create more inclusive and accepting societies, building supportive communities, and helping people along their path. It can serve as inspiration for people who may never have even given a thought to their experiences, things they witness or people who experience hardship and keep it under wraps.
Perhaps this even serves as a little nudge to be open to the experiences of others, to recognise and challenge your own biases, the things you may or may not understand. If you find yourself in a position to decide who to hire, interact with, which project to run; find the lived experience, consider the people who just need a little more support and feel like a little risk, because you never know what it could do. We can apply this to healthcare, criminology, charity, or anything that feels like it is our calling.
It can be such a tough and slow process, it won’t always be welcomed, it might not always work out. There may be people, services and societal norms or stigma that have an agenda or goals that don’t align with yours, not everybody likes change or will be willing to put in the effort. We may not always get the answers we are looking for because of the complex world we live in. But that doesn’t mean we shouldn’t try, right?
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Pregnancy and Lavender Fields
If being a women means that you will experience harm due to your socially constructed sex/gender, being pregnant and a mother certainly adds to this. The rose-tinted view of pregnancy implies that pregnancy is the most wonderful of experiences. There is imagery of the most privileged of mothers with their pregnancy ‘glow’, in fields of [insert flower here] holding their bumps with the largest of smiles. Outside of smiles and lavender field imagery, judgment is reserved for pregnant women who do not enjoy pregnancy. In a world of ‘equality gone mad’, it seems that whilst some pregnant women may have a variety of hurdles to face, it is presumed that they should carry on living in the exact same way as those who are not pregnant.
Maybe you lose your job upon becoming pregnant and your workplace does not provide you with sick pay when needed. Maybe it is harder for you to access healthcare and screenings due to racism and xenophobia. Perhaps it is a Covid-19 pandemic, your boss is a bit disgruntled that you are pregnant and despite the legal guidance stating that pregnant people should isolate you are told that you need to work anyway. Or perhaps you are quite ill during your pregnancy, you must try to cope and continue to work regardless, but must also hide this sickness from your customers and colleagues. Whilst at the same time it is unlikely that there are places for you to rest or be sick/ill in peace. If any time is taken off work you may then be considered as being work-shy by some. Despite it being well documented that some pregnancy related ill-health conditions, like hyperemesis, have serious consequences, such as the termination of pregnancy, death and mothers taking their own lives (with or without suitable interventions).
Before labour, if you go to the triage room screaming in pain, maybe you will need to wait some time at the reception for staff to assist you, and perhaps you may be asked to ‘be quiet’ so as to not disturb the equilibrium of the waiting room. Maybe your labour is incredibly painful but apparently you must ‘take it like a champ’ and pain relief medication may be withheld. Maybe you will receive a hefty bill from the NHS for their services due to your undocumented migrant status, refused asylum application or have no recourse to public funds. If experiencing pain post-labour, maybe your pain is disregarded, and you face life-threatening consequences due to this.
Once you become a mother maybe you are more exhausted than your partner, maybe your partner is a abusive, maybe they cannot push a pram, change nappies, calm a crying baby because of toxic masculinity. If your baby becomes upset (as they do sometimes) whilst out and about you may need a quite low sensory place to feed them, or for them to relax but there is nowhere suitable to go. If looking flustered or a bit dishevelled whilst out maybe you are treated as a shop-lifting suspect by security and shop assistants.
If you have the privilege of being able to return to work, ensure that you return within the optimum time frame as having too much or too little time off work is not viewed as desirable. Also, make sure you have some more babies but not too many as both would be deemed selfish. Whether you breastfeed or provide formula both options are apparently wrong, in different ways. If you do breastfeed and need to use a breast pump whilst returning to work you may find that there are no/or a limited amount of suitable rooms available on public transport, at transport hubs, in public venues and workplaces for using a breast pump. This, among with other factors, such as the state of the economy, the lack of/a poor amount of maternity pay, and childcare costs, make the ability to both maintain formal employment and be present as a healthy mother difficult. Notably, the differences, extent and severity of harmful experiences differ depending on power, your status and identity attributes, if your gender does not neatly fit into the white privileged/women/female/mother box you will face further challenges.
It seems that society, its institutions and people want babies to be produced but do not want to deal with the realities that come with pregnancy and motherhood.
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Proud to be kind
On Sunday 8th October 2023, I ran the Royal Parks Half Marathon to raise money for Freedom From Torture. It took 2hrs 11mins and 56 secs in 24 degree heat; 27 supporters who donated to Freedom From Torture to sponsor me; 5 friends who were with me on the day and kept my dehydrated spirits up; 30+ individual messages of support and encouragement on and before race day; countless well wishes and congratulations after the race; and £705 raised to rehabilitate and treat torture survivors.
The humanity and kindness shown by those who donated, checked in on me, wished me well and trained with me was overwhelming. £705 is an extraordinary amount of money and is going to make a huge difference to people’s lives who have run from torture, harm and unlawful persecution. Freedom From Torture offers, people who have experienced torture, safety and provides them with skills to be able to manage and overcome their trauma. Rooted in the foundations of this charity, and individuals that support it, is the notion of kindness, caring and wanting to live in a better world were our identities as humans are what transcends all conflict, hostility and harm in the world.
Sunday 8th October was an emotional day. Because of the focus on training (actually reaching 13.1miles/21.097km), my reasons for running and raising money for Freedom From Torture became, sort of, an afterthought- something that snuck up on me now and then rather than the focal fuel powering my legs! Even the steady influx of donations didn’t quite have the gravatas to let the reality sink in. That my silly (albeit very long) run is going to be positively impacting people’s lives! People who have experienced grave harms, displacement and social injustice. It wasn’t until the race began, where other charities and organisations were visible, being surrounded by other runners in their tops signifying who they were running for, where the enormity of the event, distance and possible impact this could have, hit home! Tears as the race begins.
Tears also followed after the race. Not to be too boastful but: I ran a half marathon! On a week where my chronic illness had seriously kicked my butt! Flash back to Thursday that week and I was concerned I wouldn’t make it to the race, let alone finish it! Once that wave of overwhelmingness passed, the next wave was not far behind. People I know and care for, and people I do not know, have banded together to support survivors of torture. Their donations will provide therapy, counselling, support for survivors of torture to manage their trauma and to be able to rebuild lives which had been destroyed. The people who donated and supported in all capacities have demonstrated incredible kindness, and the reality of what this money is going towards reduced me to yet another round of tears. But this time, tears of joy. Look what we can achieve! Look what we can do with kindness! Look what we can do when we lean on those around us!
Sunday 8th October 2023 will be a day I shall not forget. It is a day which I am immensely proud of. Not just of my running achievement, but the achievement of all those committed to making a change and providing support to those that need it. Thank you to everyone who has been with me on this journey to raise money to support survivors of torture: it couldn’t have been done without you!
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In the spirit of Black History Month
In the UK, Black History Month is celebrated annually throughout the month of October. 4 weeks are allocated to reflect on the incredible achievements and contributions of Black trailblazers throughout history, and it is a period when their remarkable works are most recognised. Of course, I do share the argument that celebrating the remarkable works of Black leaders should not be limited to one month, but to every month. I also believe that Black History Month provides a unique opportunity to focus our attention on those who have helped shape our world in their various areas of strength.
This year’s theme is “Saluting our Sisters!” and I could not be more excited to use this medium to salute and highlight some of the important Black figures who are often overlooked, ignored or unnoticed. Firstly, I’d like to salute Professor Olivette Otele, the first female Black professor of history in Britain who has continued to use her platform to expose the legacies of the past and redefining the social perception of Black women. I salute our very own Asisat Oshoala, a professional footballer who holds an outstanding 5x record of the African Women’s Footballer of the Year, and an exceptional role model for the younger generation. I salute Ramla Ali, the first female ever in history to compete in the Kingdom of Saudi Arabia in a professional boxing competition, a role model for the younger generation and has continued to use her platform to champion female empowerment. I salute Kym Oliver and Jumoke Abdullahi, who have also campaigned and shaped our thinking about the multiple layers of discrimination that Black disabled women face in societies, and to all the sisters who are breaking barriers in all aspects of their lives – I salute you all.
Education has always been an integral part of Black History Month. Through education, we manage to share awareness where, regardless of ethnicity, everyone can gain a deeper appreciation of the contributions of Black communities in many spheres of life. As part of this momentous occasion, the Black Criminology Network, in partnership with the criminology team at the University of Northampton, will host a series of webinars to celebrate Black History Month. This is a yearly practice at UON criminology, and the line-up for this year’s webinar couldn’t be stronger.
I salute our sister, Dr Leah Cleghorn from Nottingham Trent University, who on Wednesday, provided a sharp analysis of the many legacies of colonialism in the Caribbean, with a particular focus on punishment and penal systems. While deconstructing the issues of colonial-era punitive policies, Dr Cleghorn reminded us eloquently that much of the Penal Code and criminal law in Trinidad and Tobago derives from British colonial laws and in some ways, rehabilitation and reforms have been slower to take hold. Dr Cleghorn aptly called for the enhancement of therapeutic jurisprudence – as the current penal system continues to fail to meet its aims. There was so much to unpack from that lecture, and I would like to thank Dr Cleghorn for that comprehensive narrative.
I would also like to salute our sisters, Angela Charles, from Open University who will be leading another webinar on the experiences of Black women in prison on Wednesday the 18th of October, as well as Dr Janeille Zorina Matthews from the University of the West Indies, Barbados who will be exploring the recently published data on incarceration in the Anglophone Caribbean. Please follow the links to book a free space.
Apart from these webinars, the University of Northampton will also be hosting a series of other events, from Black academics and authors in celebration of Black History Month. Click here to learn more about Black History Month 2023 at UON.
Though these conversations happen year-round, Black History Month amplifies them. And while there’s still progress to be made, honouring history and showcasing Black excellence at the University of Northampton reminds us of the remarkable potential of diversity. The stories, experiences, struggles, excellence and creativity, emanating from Black History Month continue to make our community more aware, wiser, more just, and more united.
Salute to all our sisters.
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Saluting Our Sisters: A Reflection on the Living Ghost of the Past
Sarah Baartman. Image source: https://shorturl.at/avLO4
In the 20th century, many groups of people who had been overpowered, subdued, and suppressed by imperialist expansionist movements under arbitrary boundaries began challenging their subjugation. These emancipation struggles resulted in the emergence of quasi-independent, self-governed African nation-states. However, avaricious socio-economic opportunists were aided into political leadership and have continued to perpetuate imperial interests while crippling their own emerging nations. Decades later, it has become clear that these ‘new states’ have become shackled under the grips of strong and powerful men who lead a backward and dysfunctional system with the majority of people impoverished while they enervate justice and political institutions.
Prior to this, the numerous nation states now recognised as African states had developed their distinct social, political, and economic systems which emerged from and reflected their distinctive norms and cultural values. Barring communal disputes and conflicts, robust inter-communal associations, interaction, and commerce subsisted amongst the nations, and paced socio-economic developments were occurring until external incursions under different guises began. Notably, the tripartite monsters of transatlantic slave trade, pillage of natural resources, and colonisation which not only lasted for centuries, disrupted the steady pace and development of these nations. It destroyed all existing social fabric and capital of the people, and forcefully installed a religious, socio-political, and economic systems that are alien to the people.
Ironically, while the transatlantic slave trade and colonialism were perpetuated under the guise of a “civilizing mission,” it took over three centuries for the “civilised” to realise that these abhorrent incursions were far from being civilising, and that they themselves required the civilisation they purported to be administering. However, while one might imagine that this awareness would lead to remorse and guilt-tripped sincere repentance for the pillage, pain, and atrocities, the abolition and relinquishing of political power to natives, the following events symbolized the contrary. Neo-colonialism was born, and international systems and conglomerates have continued the pillage on different fronts as aided by the greedy political class. Thus, it is unsurprising that yet again, strong, and powerful men are revolting against and deposing the self-perpetuating, avaricious socio-economic opportunists who wield political power against the interests of their nations in series of military coup d’état.
It is clear that the legacy of exploitation and subjugation has brought about a new set of challenges. Leaders entrusted with the responsibility of fostering prosperity in their nations often succumbed to personal gain, perpetuating a cycle of exploitation reminiscent of the imperialist era. This grim reality creates a stark contrast: while the majority of citizens are trapped in poverty, a powerful minority wields disproportionate influence, eroding the foundations of justice, economic prosperity, and political stability. As a result, for the vulnerable, seeking safety, economic freedom, and escaping from dysfunctional systems through deadly and illegal migration to other parts of the world becomes the only viable option. However, unbeknownst to many, the lands they risk everything to reach are grappling with their own challenges, including issues of acceptance and association with once labelled ‘uncivilized’ peoples.
Black History Month sheds light on these challenges faced by the black community and other marginalized ethnic groups globally. This year, the theme ‘Saluting our Sisters’ invites us to reflect on the contributions of Black women to society and the challenges they continue to face. It is also important to reflect deeply on how we consciously or unconsciously perpetuate rather than disprove, discourage, and distance ourselves from sustaining and growing the living ghost of the past. As Chimamanda urges, perhaps considering a feminist perspective in our actions, practices, and behaviour can be a powerful step toward recognizing and acknowledging how we perpetuate these problems. Dear Sister, I admire and salute you for your resilience and tenacity in making the world a better place.
Thoughts from the criminology team 